I have written
this post in my head a million times over the last four months. Maybe even longer, I really don't remember. When I began writing about my daughter's
mental illness, I wanted to share hope with my readers. A few things happened after a while. I denied the illness would continue for years
to come. I grew tired of explaining
things to people in phone conversations and in person. With this last one, I also grew tired of the unsolicited
advice and unwanted comments about our parenting techniques and my daughter
being spoiled. I stopped writing. The problem is that I need to write. I need to share. If I don't, I stuff all of the stress,
anxiety, and negativity down inside me until it explodes into a physical
illness for me. My silence has not been
a silence because of healing, but a silence of protecting myself from other
people. But now I have to break my
silence.
Last April, I
put my daughter in the hospital while I worked with my dear husband who was on
a work trip. A dear friend stood beside
me the entire time, literally, while another was on the phone with me when I
needed the extra moral support. I chose
not to tell a lot of people about this because I didn't need the questions,
opinions, and frankly, the other garbage that people throw out at you when they
have never lived this crisis. (I used to
be one of those people. I get it. But now that I do know the reality, I don't
need the complications.) We made it
through this trauma to survive another day.
I held onto hope that high school would get better. All of us looked forward to a new start. Denial!
Mental illness
is never cured. I am reading a book
right now which says that with metal illness there is only temporary recovery. This means the illness is still there, but
the sick person is able to use strategies to help themselves avoid or work
through the anxiety and panic. They can
live a "normal" life. (A dear
friend of mine, in the past year, has shared with me her mental illness and I
had no clue until then her daily struggles.
She is such a beacon of hope for me.)
A thirteen year old doesn’t learn all of this in two and a half years to
face high school as a "normal" kid.
Writing all of this makes me feel like an idiot. Logically I should have faced this. Instead, I denied the illness. Because of it, I had unrealistic expectations
for the beginning of the school year.
Of course, we
haven't stopped working towards a healthier life for my girl. In May and June, we had her tested at Intermountain. The doctor there was amazing. She still sees her doctor of two and a half
years. She goes to an amazing therapist
who prays with her and loves her like the most amazing grandfather/father
figure. During the summer, she rested as
did I. Our first defeat came in June
when we were denied a transfer to a new high school. She wanted a fresh start. The school she had to stay with is trying. They have been kind and compassionate. We have asked for an IEP. She has been on a 504 but needs the stronger
program at this point.
We have entered
a new world. In high school, she can't
miss all the school she did before. At
least, we have stressed about that. Hopefully
something can be done. Already, she has
missed two days. I am not sure she will
make it much this next week. There are
so many uncertainties. We feel lost and
confused, hurt and desperate. And this
doesn't include the stress of finances, military career at an older age, my
physical disability, and normal life.
Yep, it was a bad ending to a good week.
As is typical, I
am reading a book. I have called
Intermountain for more options of counseling for our girl and the rest of us. We have another meeting set with the
counselors. I need to start asking
questions. What is school going to look
like this year? Do I get sent to jail
for not forcing her to go? How do I keep
her from despairing to the point of cutting again? How do I keep myself together? How do I help my husband? I think you all get the gist.
I don't write
any of this to have the world feel sorry for us. Everyone has their cross to bare. I write because I am a writer. Writers want to be heard, need to be heard. I write so if the invisible internet can
connect my post to others going through the same trials they will see they are
not alone. I write because I personally
know some people out there that may give some encouragement because they have
either been there or are in the trenches themselves. I write to educate those who want the lesson
to know how to help friends and family in need, not to judge, advice, or
criticize. And if you don't understand,
research. Don't ask the person going
through it to explain. Don't pester them
with questions. Their primary job is to
take care of themselves, their child, and those living in the house with
them. Chances are they can't answer your
questions and it just hurts them to have to try. And, it pushes them to silence. Instead, listen, encourage, and love.
HI Lisa. I get it. Though neither of my kids had mental illness my husband has dealt with chronic pain and a host of other issues and surgeries for 36 of our 40 years of marriage. Now that it is just the two of us and we are both retired I am working on how this has impacted me over the years as well as what our future lives together will look like.
ReplyDeleteI do know that God has carried us and provided us what we need every step of the way as he has for you.
It is hard to see through things sometimes. Rejoice in the good moments. They will give you hope in the not so good moments.
Thank you, Linda. God is a huge part of our journey. He has placed amazing people in our life who help in many different ways. I do give thanks. And I give God thanks for having you. Your kind words are a treasure.
DeleteLove and prayers for you Lisa. I read a quote in a CS Lewis book that helps me tremendously "all you really have to worry about is today and eternity."
ReplyDeleteMy prayer for you is that you and your daughter will have a great today.
I have a neice with scitzophrenia, She is married and has three beautiful children. She struggles every day with just managing daily life, especially appropriate sleep habits. But she, with the support of her husband (who suffers from anxiety), her family,and her church, is a great mom and wife.
Patti, I will take those prayers and love! They help keep me going. Thank you for sharing about your niece. I think my hardest struggle is worrying about the future. I want so much for my girl. I will keep your niece's story close to my heart. Blessings.
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